Data and Trust For Health and Wellness SDG3 with a reference to Climate Change


IGF Dynamic Coalition on Data Driven Health Technologies

Session 199

Monday, 7 July 2025 15:00–15:45 (UTC+02:00) Physical (on-site) and Virtual (remote) participation Room G, Palexpo Interactive Session 1 Document

Excellence in communication, data collection and management, for quality AI and technology applications

It is critical that the quality of data entering AI and other data based systems is clear; relevant; accurate; readable; meaningful; fit for purpose; translatable; free of bias; creditable; honest; free of error and bias; culturally aware; aware of skill levels; free of mis-information; free of dis-information; legitimate; complies with privacy and other legislation; aware of communication styles;  legal; factual; trusted and so forth. Poor data quality input can result in poor data outputs. This can have serious consequences for health and wellness data reporting and use, as well as for all applications of ICTs.

Data that goes on to be shared with secondary systems such as for AI data gathering can be prone to poor quality and even hallucinations, if the primary data gathering system is not secured for a high data quality standards for pattern building, profiling, benchmarking, meta data tagging, statistical analysis etc. Unstructured data carries risk. Unintended consequences can occur, with poor data quality, causing serious issues for the risk management of data. With regards to climate change issues impacting health, it is important that the public communications are clear. Human communication or messaging must be consistent and clear. Interpersonal communications between patient or care-giver and the medical profession must be trusted, ethical and at the correct skill, knowledge level, and free of bias and harm. 

This session will explore view-points on securing data quality for quality data systems from the perspective of health, wellness and climate change and for ICTs in general. Examples of technology in use, that support trusted data sharing will be examined, e.g. blockchain. 

Panellists
Ms. Amali De Silva - Mitchell
Ms. Amali De Silva - Mitchell Coordinator IGF DC DDHT IGF DC DDHT - UK / Sri Lanka CPA, CMA, Msc Moderator Remote Panellist

Amali has her education in Economics (BSc(Hons Econ Warwick) , Accounting (MSc, LSE CPA, CMA) and Computer Science (Imperial College). She has worked in Industry, Non-Profit and Government for over 25 years as an accountant, auditor, application manager, speaker / trainer / facilitator and data controller. She founded the WSIS North American caucus in 2002, was President of a npo ISP and Director of the BC Freedom of Information & Privacy Association and United Nations Association of Victoria. She is currently on the board of the European Individuals Association affiliated with ICANN and Founder & Coordinator of IGF DC DDHT. 


Dr. Jorn Erbguth
Dr. Jorn Erbguth Stakeholder IGF DC DDHT University of Geneva, Germany Speaker & Moderator Moderator

With a dual background in law and computer science, Jörn Erbguth bridges the gap between technology and law. After working as a CTO, he wrote a PhD thesis on a framework for long-term revocable credentials using blockchain and complying with data protection regulations. Jörn is a consultant on data protection and sustainable innovation. Jörn has co-organized sustainable innovation cycles for Geneva Macro Labs. He is co-founder of the association entscheidsuche.ch – a platform that makes more than 600,000 Swiss court cases available to the public. Jörn is also member of the program committee of EuroDIG. He is affiliated with the University of Geneva and is a stakeholder member of DDHT. 


Dr. Amado Espinosa
Dr. Amado Espinosa Stakeholder IGF DC DDHT CEO Medisist, Mexico Remote Panellist

Amado Espinosa, MD, MCS, MBA, PhD, is a Medical Informatician dedicated to research, development ‎and implementation of IT systems and their applications for improving the quality and performance of ‎healthcare provider organizations in Latin America. Dr. Espinosa received his MD from the University of ‎Puebla, Mex, and his clinical speciality in Anesthesiology from the IMSS in Mex., as well as his MBA, and ‎his Master in Computer Science (MCS) from the University of the Americas, Mex. He received his PhD ‎from the Medical School of Hannover, and a certificate as Medical Informatician from the German ‎Society of Medical Documentation and Statistics. He is the founder and CEO of Medisist, a global ‎company focused on integrating technology to better serve the patient and medical professionals, as well ‎as healthcare provider organizations and institutions.  Dr. Espinosa has chaired and served on advisory ‎committees and working groups with IMIA, PAHO, WHO, ISO/TC215, HL-7, SNOMED, NLM, and the ‎Rockefeller Foundation, in order to deploy Digital Health international standards, national projects and ‎interventions in Latin America. Dr. Espinosa has been invited to join think-tank groups for the Ministries ‎of Health in Colombia, Ecuador, Peru, Chile, Argentina Brazil, Central America, Caribbean and Mexico for ‎planning, using and adopting IT to improve healthcare services at a long run. With academic ‎relationships in Mexico, LA, USA and Europe, serving AMIM, IMIA-LAC, IMIA, and through international ‎research institutions, Dr. Espinosa is continuously fostering crossing collaboration to innovate and ‎disrupt healthcare services and has been recipient of different recognitions. As the Chairman of WITSA’s ‎Global Public Policies Summit 2011 and the WCIT2014, he has joined IFG & WSIS conferences and ‎represented CANIETI & AMITI worldwide.


Dr. Houda Chihi
Dr. Houda Chihi Chief Technology Officer Tunisa Telecom, Tunisa Remote Panellist

Houda Chihi holds a Phd in telecommunications. She is senior researcher at Innov’COM Laboratory of Sup’COM Tunisia, Techwomen Fellow 2019. Her research focus includes wireless communication, mobile communication, signal processing, vehicular communication, Cybersecurity,AI, digital inclusion & equity. Houda is North Africa coordinator of IPV6 Cybersecurity, is a member of ISOC chapter Tunisia , is a member of African Union Expert Cybersecurity Group , member of NCSG ICANN and reviewer in many IEEE conferences. Houda is an ICANN & IETF fellow. After her PhD she worked as a temporary assistant in many engineering schools well ranked in Tunisia such as Sup’COM, ISET'COM , ESPRIT , ISAMM. She was selected as TechWomen Emerging Leader which is a funded program by IIE of US in 2019. Houda got the opportunity to spend a professional mentorship at Qualcomm California where she learned about 5G , V2X, WIFI 6 technologies. Houda Chihi is an international speaker and trainer.


Ms. June Parris
Ms. June Parris Stakeholder IGF DC DDHT, Former IGF MAG member Nurse, Barbados RN Remote Panellist

Ms. Parris June has experience in business development and research, involved with startups, business support and voluntary work; Has written and been involved in policy making and outcomes for the NHS Primary care; Experienced Nurse in Primary Care, Chronic disease management , General and Surgical care and Clinical Research and Management; Specialty in Psychiatric Nursing with an interest in Dementia and incarceration; Experience in lone working and working from home; Committed to culture and the arts social interaction and well being;
Experience in contracts that involve traveling and commuting; Has been involved in ground breaking research. Recently Nutrition in pregnant women; Is on the Action team for the ISOCBB both internal and external; Has lived in Barbados , Germany , Scotland and the U.K.;
Loves technology and has been involved in collection data to be used in building soft wear;
Loves traveling, gardening , culture and the arts.


Dr. Joao Rochas Gomes
Dr. Joao Rochas Gomes IGF DC DDHT Next Gen Medicat Lead Ada Health, Portugal Moderator Remote Panellist

João Rocha Gomes is a medical doctor and health economist, having graduated from the University of Porto (Portugal). After medical experiences in Porto, Warsaw and London, he pivoted fully into the digital health space, where he has worked for the past years, leveraging technology in healthcare. He is also actively engaged in health policy and scientific research, lecturing medical students on the topics of Data and Digital Health. His vision extends to democratizing healthcare access worldwide, utilising artificial intelligence as a key tool in this pursuit.


Mr. Yao Amevi Amessinou Sossou
Mr. Yao Amevi Amessinou Sossou IGF DC DDHT Next Gen Technology Lead IGF DC DDHT , Benin Remote Panellist

Yao is a researcher and community leader who is actively contributing to internet governance within NRIs and intersectional working groups. A passionate advocate for youth empowerment and entrepreneurship, he champions the integration of a "Citizen Council" into the IGF process to ensure public voices directly influence policy. His work extends to crucial issues of innovation and policy, of digital rights, digital identity, and the intersection of technology, healthcare , and climate change. As a researcher focused on digitalization, eHealth, and sustainable design; his academic pursuits directly inform his policy advocacy. Ultimately, Yao is dedicated to leveraging his experience to empower ordinary citizens, believing they are the key to driving transformative change in our shared digital world. Yao is the newly elected policy chair of the NPOC.


Mr. Rodrigo Silva Rojas
Mr. Rodrigo Silva Rojas Medical Technologist IGF DC DDHT, Chile Remote Panellist

Rodrigo is a health scientist, advocate, and a member of the LGBTQ+ community. He holds a bachelor's degree in medical technologies from his home country, Chile, and a master's degree in health sciences from Hamburg. His background has been shaped by diverse experiences, including participation in the research team of the BIRMM at the VUB in Brussels, as well as research on digital health trends and the digitalization of hospitals in Germany.

In recent years, he has shifted his career toward research in digital health technologies, with a focus on education using artificial intelligence and virtual reality as training platforms. Rodrigo actively promotes and encourages dialogue at the intersection of LGBTQ+ issues, health sciences, and clinical care.


Ms. Renate Guenther
Ms. Renate Guenther Business Development Director Geneva Macro Labs, Switzerland Moderator

Renate Guenther is a Business Development Director and has held leadership roles at The Economist Group, Dow Jones, POLITICO, and Reuters. She is also Co-Founder and Board Member of the Geneva Macro Labs think-and-do tank. Renate holds a postgraduate Master’s degree in International Strategy and Leadership from the Geneva Graduate Institute, as well as a Master’s in Business Communication from the University of the Arts Berlin. She brings a cross-sector perspective to global conversations on technology, policy, and inclusive development.


Topics
5G Technology Artificial Intelligence Big Data Blockchain Capacity Building Cloud Computing Cultural Diversity Cybersecurity Digital Divide Digital Economy Digital Inclusion Digital Skills Digital Transformation Education Emerging Technologies Environment Ethics Global Digital Compact (GDC) Health Human Rights Infrastructure Machine Learning Media Smart Cities WSIS+20 Review
WSIS Action Lines
  • AL C1 logo C1. The role of governments and all stakeholders in the promotion of ICTs for development
  • AL C2 logo C2. Information and communication infrastructure
  • AL C3 logo C3. Access to information and knowledge
  • AL C4 logo C4. Capacity building
  • AL C5 logo C5. Building confidence and security in use of ICTs
  • AL C6 logo C6. Enabling environment
  • AL C7 E–HEA logo C7. ICT applications: benefits in all aspects of life — E-health
  • AL C8 logo C8. Cultural diversity and identity, linguistic diversity and local content
  • AL C9 logo C9. Media
  • AL C10 logo C10. Ethical dimensions of the Information Society
  • AL C11 logo C11. International and regional cooperation

This session supports C7. ICT applications: benefits in all aspects of life — E-health. However, the discussion is applicable across most sectors, as it focuses on "data gathering" and "processing" a common feature of all data based systems. 

Sustainable Development Goals
  • Goal 2 logo Goal 2: End hunger, achieve food security and improved nutrition and promote sustainable agriculture
  • Goal 3 logo Goal 3: Ensure healthy lives and promote well-being for all
  • Goal 4 logo Goal 4: Ensure inclusive and equitable quality education and promote lifelong learning opportunities for all
  • Goal 6 logo Goal 6: Ensure access to water and sanitation for all
  • Goal 7 logo Goal 7: Ensure access to affordable, reliable, sustainable and modern energy for all
  • Goal 9 logo Goal 9: Build resilient infrastructure, promote sustainable industrialization and foster innovation
  • Goal 11 logo Goal 11: Make cities inclusive, safe, resilient and sustainable
  • Goal 13 logo Goal 13: Take urgent action to combat climate change and its impacts
  • Goal 14 logo Goal 14: Conserve and sustainably use the oceans, seas and marine resources
  • Goal 15 logo Goal 15: Sustainably manage forests, combat desertification, halt and reverse land degradation, halt biodiversity loss
  • Goal 17 logo Goal 17: Revitalize the global partnership for sustainable development

Goal 3: Ensure healthy lives and promote well-being for all

Goal 17: Revitalize the global partnership for sustainable development with particular reference to climate change

Links

Dynamic Coalition on Data Driven Health Technologies (DC-DDHT) | Internet Governance Forum

Internal Control | COSO

Reference, ISO, IEEE etc.

Guidance on Data Quality - Canada.ca

The Government Data Quality Framework - GOV.UK

Data.europa.eu - Data Quality Guidelines