Strengthening health data governance legislative frameworks: The foundation of trusted digital health and AI


Transform Health

Session 127

Monday, 6 July 2026 09:00–09:45 (UTC+02:00) Physical (on-site) and Virtual (remote) participation Room E, ITU Varembé Building Interactive Session
Register »

Physical (on-site) and Virtual (remote) participation


The health sector is undergoing rapid transformation driven by artificial intelligence and other digital technologies, which are now integral to health system delivery. Data underpins these systems and must be governed responsibly and equitably through strong legislative frameworks that improve health outcomes while protecting rights and upholding data sovereignty. Effective governance is essential to ensure transparency, accountability, and public trust in digital and AI-enabled health systems. Government action is crucial to strengthen national legal and regulatory frameworks governing health data. At the same time, regional and global cooperation is essential to promote coherence through shared standards and frameworks. Collaboration would also support cross-country learning and coherence, fostering responsible data sharing within and across borders. 

This session will look at health data governance in the digital age, including how AI is changing the game. It will explore the need for urgent action to strengthen national, health-specific legal and regulatory frameworks, as well as the need for regional and global frameworks to support more secure, ethical, and equitable data and AI use and foster responsible cross-border data sharing. It will showcase recent tools and initiatives to advance this agenda (including the health data governance principles and legislative blueprint/model law - https://healthdatagovernance.org), progress on regional frameworks (such as the Africa Continental Framework on Health Data Governance), as well as global discussions through the World Health Assembly.  

This session will combine national and regional implementation experience with global policy leadership, offering both practical insight and a pathway for collective action that bridges country needs, regional coordination, and global alignment and standard-setting. It will highlight political realities, lessons learned, and clear opportunities for progress.

This session contributes to the vision of WSIS by exploring how stronger health data governance can enable trusted digital health transformation, support equitable access to the benefits of AI, and strengthen international cooperation on digital policy. As countries work to implement the WSIS Action Lines and advance the Global Digital Compact, health data governance offers a concrete opportunity to translate global digital principles into improved health outcomes, greater trust, and more resilient health systems.

Panellists
Ms. Mathilde Forslund
Ms. Mathilde Forslund CEO Transform Health

Mathilde is the founding CEO of Transform Health - a multi-sector coalition that sets out to harness digital technology and data to accelerate progress towards universal health coverage (UHC). She leads the global secretariat of the coalition and reports to a board of directors of senior leaders in global health. The coalition has grown from a founding network of seven partners to more than 200 organisations worldwide working to tackle joint objectives around digital health transformation.

Mathilde is a seasoned advocate and coalition builder with experience bringing partners and networks together to deliver on global agendas. Mathilde has an MA in International Studies and Diplomacy from the School of Oriental and African Studies (SOAS), and an executive master’s in Tri-sector Collaboration from Singapore Management University. She has spent the majority of her career building multi-sector partnerships. Previous to Transform Health, she held senior roles at World Vision International, where she advocated for improved child nutrition through advocacy and popular mobilisation campaigns and facilitated cross-sector partnership around nutrition innovation across 20 countries in Asia. 

She also worked as a strategic advisor to Fondation Botnar, World Vision International, DSM/Sight and Life Foundation to support the development of their digital transformation strategies and guiding new innovation around private-public partnerships. Mathilde’s career spans over 16 years living in Asia, East Africa, Europe, and currently San Francisco. She holds several board positions to tackle issues that she cares about such as responsible AI, digital governance, and inclusion. She also represents Transform Health as a member of the UHC2030 Task Force and as a Steering Committee member on the UNITE Parliamentary Network on Global Health. She is a passionate champion of young people and women’s digital/data rights and representation.

Twitter handles: @mathildeforslun, @Trans4m_Health


Eng. Ambassador Jamal Alshanfari
Eng. Ambassador Jamal Alshanfari Head of Health Office to World Health Organization Sultanate of Oman Permanent Mission

Ambassador Engineer Jamal bin Salim Al Shanfari is a distinguished Omani diplomat and national health leader with over 23 years of experience in healthcare infrastructure, biomedical engineering, and international health diplomacy. He currently serves as Head of Oman’s Health Office at the World Health Organization in Geneva, representing Oman in global health governance and policy negotiations. Previously, he was Director General of Projects and Engineering Affairs at Oman’s Ministry of Health, overseeing major national projects and innovation initiatives aligned with Oman Vision 2040. Ambassador Al Shanfari is widely recognized for his integrity, strategic vision, and commitment to advancing health, peace, and sustainable development worldwide.


Ms. Linda Bonyo
Ms. Linda Bonyo Founder Lawyers Hub

Linda Bonyo is Founder of the Lawyers Hub; a Digital Law organization working on Artificial Intelligence Policy in Africa. She convenes the Africa Law Tech Forum where Policymakers, Regulators and Bar Associations in Africa lead Regulation of emerging Technologies. Ms. Bonyo is a member of the World Economic Forum's Global Council on Technology Policy (2023-2025) and the G20 Digital Working Group. She serves in the Africa Union’s Artificial Intelligence working Group and previously the AU’s Continental Data Policy Framework Technical Committee. She has consulted for the United Nations Economic Commission for Africa on Data Governance, Digital Identity and Artificial Intelligence Policy providing technical assistance on policy frameworks for member states across Africa. Linda Bonyo is a licensed attorney of good standing in Kenya Ms. Bonyo was named 100 most influential people of African Descent 2022 by MIPAD at the UN General Assembly. In addition, she was globally awarded as a privacy practitioner in Digital Identity and awarded by SEMAFOR rest of the world awards for the most influential and impactful people in Global Tech 2022. She believes in innovation that serves humanity furthers inclusion and amplifies voices of the global majority. 


Ms. Kirsten Mathieson
Ms. Kirsten Mathieson Deputy Director and Policy Lead Transform Health Moderator

Kirsten is the Deputy Director and Policy Lead at Transform Health, a global coalition of more than 230 organisations supporting the enabling environment for the digital transformation of health systems to achieve Universal Health Coverage. Kirsten leads the policy and influencing work of the coalition, with a focus on health data governance, digital health investment, and digital health as an enabler and accelerator of UHC progress. She represents Transform Health on the Advisory Group of the Civil Society Engagement Mechanism (CSEM) of UHC2030, the UHC2030 Task Force, the WHO CSO Commission, and other global working groups and communities of practice. 

Kirsten has 20 years’ experience in advocacy and policy engagement on health (UHC, primary health care, digital health, data governance, immunisation), gender and equity. Previously, she was Global Head of Health and Nutrition Policy and Advocacy at Save the Children International and prior to that at Save the Children UK she led the health advocacy team. Kirsten has also worked with the UN Food and Agriculture Organisation and with UNDP Kenya. She is the former Vice Chair of the Gavi CSO Steering Committee and member of the UK Action for Global Health network Steering Committee.  


Topics
Artificial Intelligence Digital Transformation Global Digital Compact (GDC) Health
WSIS Action Lines
  • AL C6 logo C6. Enabling environment
  • AL C10 logo C10. Ethical dimensions of the Information Society
  • AL C11 logo C11. International and regional cooperation

The session directly contributes to WSIS Action Line C6 (Enabling Environment) by examining the legal, regulatory, and governance frameworks needed to support trusted, secure, and effective use of health data and AI within national health systems. It will highlight the importance of strengthening the enabling environment through robust laws and regulations that foster innovation and improve public benefit, while safeguarding privacy, security, equity, and building public trust.

The discussion also advances Action Line C10 (Ethical Dimensions of the Information Society) by addressing the ethical challenges associated with health data use and AI, including transparency, accountability, fairness, human rights, and data sovereignty. Robust legislative and regulatory frameworks are needed to ensure that digital and AI-enabled health systems, and the health data generated and used by these systems, are developed and deployed in ways that are responsible, equitable, and centred on the needs and rights of individuals and communities.

Finally, the session supports Action Line C11 (International and Regional Cooperation) by exploring the role of regional and global standards, frameworks, and cooperation in strengthening health data governance. Through sharing experiences, emerging initiatives and upcoming opportunities, the session will promote regional and global cooperation and collective action to enable legal coherence and trusted cross-border data sharing.

Sustainable Development Goals
  • Goal 3 logo Goal 3: Ensure healthy lives and promote well-being for all
  • Goal 17 logo Goal 17: Revitalize the global partnership for sustainable development

The session makes a direct contribution to SDG 3 (Good Health and Well-being) by addressing one of the key enablers of modern health systems: the responsible governance of health data and AI. Strong legal, regulatory, and governance frameworks are essential to harness digital technologies and AI safely and effectively, improving the quality, accessibility, equity, and resilience of health services while protecting individual rights and fostering public trust. By supporting the ethical and secure use of data and AI, the session contributes to better health outcomes and more people-centred health systems.

The session also supports SDG 17 (Partnerships for the Goals) by promoting regional and international cooperation on health data governance, digital health, and AI. Through dialogue on shared standards, governance frameworks, and cross-border collaboration, it will strengthen partnerships among governments, international organizations, regional institutions, and other stakeholders. Such cooperation is essential to build interoperable, trusted, and equitable digital health and health data ecosystems and to ensure that the benefits of data and AI can be realised across countries and regions.

GDC Objectives
  • Objective 4: Advance responsible, equitable and interoperable data governance approaches
  • Objective 5: Enhance international governance of artificial intelligence for the benefit of humanity
Links

https://healthdatagovernance.org/

https://transformhealthcoalition.org/

https://www.linkedin.com/company/transform-health-coalition/